Today was the first day of our third week and daddy got to get in on the therapy. At breakfast he watched through the observation window while I fed Naomi and then at lunch he got to eat with us but I directed the meal. For afternoon snack it was just him and Naomi (with a therapist of course) and they did awesome, she ate everything she was served with the exception of one piece of strawberry that fell on the ground when she started getting goofy. She downed her Miralax with no problem. I watched from the observation room without her knowledge, I think. She's a smart little cookie. She asked me this morning where was the "bug in the ear," the ear piece so the therapist can talk to me. When I said I didn't have one and there was no therapist in the room she asked is there a bug in the air? I had to laugh at that because there was a baby monitor that was projecting our voices into the observation room but there was no way for us to hear what they were saying in there. Naomi did awesome in all her meals the only issue she had was a little argument with daddy during bedtime snack. I don't know exactly what it was because I was outside of the room when it happened and I stayed out until I was sure it was over as I didn't want to step on his toes and make her think that mommy might save her from something daddy asked her to do.
The only bad news today came when we called to schedule an appointment with Naomi's GI doctor and were told she is leaving and we couldn't schedule with her. I was so disappointed, I don't want to start over again, I get so tired of starting over. We finally found a GI doctor that listens to us and really cares and now we have to hunt again. We've started over with her primary care, with GI twice, with feeding therapists several times, with dentists, the list goes on. Starting over is exhausting as going through her history is hard. I should be at an all time high, Naomi isn't using her feeding tube at all and is meeting all her calorie and most of her fluid needs, but instead I am just tired. I left a message for her old GI and am hoping we can get in one last time before she moves on, or that perhaps she is moving someplace close and we can continue with her there. I am tired tonight but tomorrow is a new day and hopefully I can live in the moment and embrace Naomi's amazing success rather than mourn the loss of another doctor.
Day 14 - 17.1kg and nothing through the g-tube.
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